Each week I am going to put up a tip for those who have been recently diagnosed. I remember when I was diagnosed four years ago, I was completely lost. I am still learning years later.
There have been so many negative consequences to having this condition. I experienced disbelief and was accused of faking my condition. I was also accused of Munchausen’s by proxy by family. You soon learn who is in your corner.

I cut these people out of my life because they are energy vampires. I don’t need that and my children certainly don’t need it. Stress is no good for EDS and other chronic illnesses.
Find your own dazzle to surround yourself with ❤

#ehlersdanlossyndrome #chronicillness #chronicpain #chronicfatigue #POTS #tipoftheday #mommyblogger #disabilityblogger #chronicillnessblogger #connectivetissuedisorder #genetics #support #friends #family #medicalzebras #findyourdazzle

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