While it should be applauded that many patients with various rare diseases are proactive in their own care and education, EDS patients take it to the next level.
To quote Professor Rodney Grahame, “No disease in the history of modern medicine has been neglected in such a way as Ehlers Danlos Syndrome”. Because of this neglect, patients and families of patients have had to become their own experts.

There is plenty of information available from @ehlersdanlosuk @ehlers.danlos for patients and doctors alike.

#EDS #ehlersdanlossyndrome #tips #dislocations #hypermobilityspectrumdisorder #hypermobile #fibromyalgia

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