About The Zebra Mom

30-year-old Yvonne (more commonly known as Evie) Evans-Nevin is a former journalist from west Cork, Ireland. She is mother to Alexander aka Bendy Boy (7) and Olivia aka Ollie Pops N’Clicks (2). In addition to juggling work and family life, Evie was diagnosed with a rare condition called Ehlers Danlos Syndrome (EDS) in 2013, one year after she was married. Other diagnoses include Postural Orthostatic Tachycardia Syndrome, Orthostatic Hypotension and Autonomic Mediated Synope, which are a result of her EDS. She shares her life story about parenting children with special needs children as a mother with special needs.

evie-blog-2

Evie has spent years advocating for patients’ rights and has spear headed campaigns to raise awareness of Ehlers Danlos Syndrome. She believes that this generation of Zebras need to fight to make life easier for future generations.

Evie loves breastfeeding, babywearing and cloth covered bums.

If it comes in zebra print, she’s gotta have it!

The zebra is the international symbol of rare diseases. Just in case you were wondering about the zebra and zebra print obsession.

She lives by her favourite quote:

“Nil Carborundum Illegitimi.”

If you have any questions in relation to any of the subject matters mentioned in this blog, do not hesitate to contact Evie. Her goal here is to educate and help others.

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s

One mother's experience of life with Ehlers Danlos Syndrome

deshocks

Views on Cork, Ireland and the world

West Cork Fit

Fiona O'Donnell MSc - Empowering Change

Pain Pals

My family & friends living with me.....and chronic illness

SPOONFULS OF GLITTER

Spoonies need spoons, so let's fill them with glitter!

My Brain Lesion and Me

Once Upon a Dizzy Spell... A Story of a girl living with a neurological condition

Reflections Of A Bear

Just a bear thinking about life with chronic illness...

Savannah Rozema - Visual Artist

"Art is why I get up in the morning" ~Ani DiFranco

seriouslygoodbullshit.wordpress.com/

My life; my experiences and observations. The fun, the joys and occasional sadnesses I'm faced with. Oh, and a little bit of BS.

Happily Hostile

Failures in Adulting

%d bloggers like this: