Somebody once told me I could run the world with my laptop and an internet connection.
Most people use the internet for mundane things like social media, checking out movie times, bus times, reading “list” articles etc. People often think they couldn’t live without the internet or rather, social media. We have forgotten what we did before the world-wide-web became a staple in people’s lives.
People with chronic illnesses and disabilities see the internet as more than just a way to settle a debate between friends about which actress played a part in some film or to keep up with the Kardashians on their Instagram stories.
The internet has allowed those of us who have been trapped in our homes by physical illness and also for those of us with crippling social anxiety to remain a part of society. We can get involved, we can change the world with just a few clicks on the computer.
This is where my path to activism started. The internet allowed me to learn from people across the world on how to change things for the better, it allowed me to get involved in social justice issues. I learned that I was far from alone in the way I lived. Trapped at home most of the time because of my illness. I am not reliable enough for a full-time job and set hours. If I could work from home, at my own pace without set hours, I’d be sorted. Those jobs are far and few between.
So, with no job, the inability to leave the house whenever I liked, the internet became my home and allowed me to fill my time and feel useful.
It’s been so long since I wrote my blog on why I am pro-choice. So there is a lot to fill you in on. I’ll try to be as brief as possible!
So with a date announced to hold a referendum on whether Ireland should repeal the Eighth Amendment, I set up Disabled People Together for Yes. We called to remove the archaic law that prevented abortion except in cases where the pregnant person’s life is under ‘a real and substantial risk.’ It meant that you couldn’t have an abortion unless you were on death’s door. Even if you were a victim of rape, incest or the foetus had a fatal abnormality.
I traveled all over Ireland attending public meetings spreading the message of how people with disabilities were disproportionately affected by the Eighth Amendment. I explained my own story of pregnancy with Ollie Pop and what would happen should my contraception fail.
I am very proud to say I was actively changing people’s minds. Total strangers approached me to tell me that they hadn’t considered how people with disabilities would be affected by the lack of abortion services. It made the complete exhaustion, excruciating pain and time away from my family totally worth it.
Right before referendum day, I flew to Manchester for REDS4VEDS day. That was the first time I had ever taken a plane alone in my 31 years and something I thought I’d never be able to do. Taking multiple buses and trains alone around Ireland prepared me for the journey.
The beauty of the internet was that in the eight months I was campaigning, I never took a day off and yet, I was making a difference. I scheduled my speeches carefully so that I wouldn’t spend any more than two days of the week traveling. When I got home, I crashed, in pain and emotionally drained. But, I still opened up the laptop to create content, share stories that were sent to me and arrange the next public outing.
My first speech was at the International Women’s Day March in Cork city.
My last speech was at the launch of Disabled Women Ireland.
I went on a few TV shows discussing the referendum, and um…let’s just say my face went a tad viral on Twitter:
I did so many things in between like writing and filming my poem “Bring Compassion Home”. Looking back on it now, I was actually so busy. I don’t know how I did it. Compassion and fighting for something you genuinely care about really can give you energy and drive that you never knew you had.
Voting Day was May 25 and that night the exit polls showed we won by a landslide. On May 26, it was confirmed. Ireland voted yes to the 36th Amendment to the constitution. The 8th was gone and nobody would have to travel for abortion anymore. In reality, that wasn’t the case, of course, there were those who were not happy with the result and went to the High Courts to contest the result. Purely a delay tactic, in my opinion. Until these court cases are put to bed, our President can not sign off on removing our 8th Amendment.
The Government has now told us it will be January before legislation will be enacted.
That means over 2,000 women will still have to travel or order pills online and take their lives into their hands.
We had hoped that we would never have to march for this cause again but unfortunately, we will be marching on September 29th. I am delighted to say that I have been invited on to the stage to speak. Last year there were 30,000 people marching so it is nerve-wracking but I am also super excited for it all!
So, what else have I been up to?
Well, I spoke at Galway University at their disability law summer school which I was really nervous doing (and it was super obvious) but after a few minutes, I managed OK.
Now? I am actually running in next year’s local election for a seat on the county council!
There is nobody in our Government that truly represents people with disabilities.
We don’t have many women in Government nevermind any women with disabilities!
I’ve also started taking driving lessons with a great instructor who specialises in helping people with disabilities. This is a huge deal for me because I had a real fear of getting back on the road. But, I’ve taken the same approach with everything else this year and just, well, did it. I was most nervous about city driving so I started my lessons in the city. Go big or go home and all that jazz.
So it’s been a really hectic year so far and it all started with a new year’s resolution to not say no to opportunities because it was scary. Scary or not, it has been one of the best years of my life. I got to visit new places and meet the most amazing people including one of my favourite authors, Louise O’Neill.
I was offered so many additional opportunities. I know if I had said no to that initial speech on International Women’s Day, I wouldn’t be in the position I am in today. There have been so many things before that I had the opportunity to do but fear stood in the way.
In addition to my own political campaign, I am now getting involved in helping the people of Northern Ireland get the same reproductive rights as we achieved. There is so much more I want to achieve and get involved in!
So moral of the story is that we can change the world within the confines of our homes and that when you say yes to things (despite it being really scary), wonderful, wonderful things can happen. There is nothing worse than wishing you had taken the chance on yourself. You just never know where it can lead you and what doors can open as a result.
What is your passion? Is there a cause you feel very strongly about? Let me know in the comments below!