I spoke with some fellow EDS zebras about some of the down right crazy things they have heard from health care professionals, friends and family about their condition. Comment below if you have anything you’d like to add to the list.
1. You have EDS because you’re vaccine injured.
No. Just no. A vaccine isn’t going to alter my genes. Shoo! EDS is genetic. GEN-ETIC.
2. You have EDS because you’re possessed.
Seriously. This came from a chap who works in my local takeaway. Offered to make me herbal blends to cleanse my soul. Thanks, but no thanks, mate. Stick to making pizza, k?
3. You obviously have Lyme disease. That triggered your EDS.
Yes, there are some overlaps with EDS and Lyme but the latter isn’t going to cause your collagen to magically turn into a chewing gum like consistency.
4. You have EDS because you’re stressed.
I was told the stress of my wedding caused my EDS. If that’s true then EDS must be far more common! We should all stay single. Job done.
5. You’re husband is a lucky guy.
*insert pervy wink here* Shockingly, this came from a Doctor!
This is the extend of my bedroom antics, Doc. Seriously, I’m more likely to pop out a hip than to climax.
6.You’re sick because you’re in a bad relationship
This was in the Doctor’s office and my husband was sitting right next to me. The only bad relationship here is with this Doctor.
I mean, talk about awkward. If a Doctor was genuinely concerned about the patient, wouldn’t they wait until their patient was alone? Nobody is going to admit they are in a bad relationship in front of the person they are in a relationship with. Anyway, the point is martial issues are never going to cause a person to dislocate a joint.
7. You’re too young to be sick
Yes, because that’s how chronic illness works. You wonder if these health care professionals obtained their degrees from the bottom of a cereal box. Do you even science, bruh?
I’m too young? Hold on a sec while I tell my body that I’m not actually 90 years old.
8. You’re too short to have EDS
I think you’re confusing my condition with Marfan Syndrome.
9. A holy man once surrounded my hospital bed with his followers they started to chant and pray.
Well, that’s just creepy.
Here, while your at it, could you pray for me to win the lottery so I can pay for my very expensive medical treatment? Oh it doesn’t work like that? Silly me.
10. Your son has EDS because you’re a bad parent.
Like, what the actual F?
The child’s mysterious problems are from his mother yelling at him and letting him get away with too much all at the same time. This was said by a paediatric consultant!
11. Someone assumed because I was in a wheelchair that I was mentally affected.
I was seen in the wheelchair while being pushed by my husband and this old man saw me in the chair and automatically thought I had an intellectual disability. We had our dog with us and looked at me and said (in baby talk voice, no less) “is that your cat? Hah?! Is that your cat? What a lovely cat hah? HAH??!”
I just looked at him smiled and said nicely “yeah funny looking cat, no?! The poor man looked shocked. He just said, “have a nice day” and skootled off quickly.
What do you do in a situation like that? Laugh? Cry? Both?
Has any thing like this happened to you? Let me know in the comments!
Share this with your friends and family to help educate them.
Until next time,